Showing posts with label mental health. Show all posts
Showing posts with label mental health. Show all posts

Friday, April 10, 2015

No Care for Us

ACCESS DENIED

Non-Medicaid Expansion States Block Uninsured People with Serious Mental Illness from Receiving Affordable, Needed Treatments
Prepared by Joel E. Miller, James K. Finley, Rebecca Gibson and Whitney Meyerhoeffer

A new groundbreaking study from the American Mental Health Counselors Association (AMHCA) shows that nearly 570,000 people diagnosed with a serious mental health condition, would have received affordable, needed treatments, but were denied access to services because several states refused to participate in the new Medicaid Expansion Program. The federal government would have paid 100 percent of the treatment costs; the monies were already included in the federal budget. The comprehensive study also highlights that 458,000 fewer people would have avoided a depressive disorder mainly by securing health insurance through the Medicaid Expansion Program.

The study, entitled “Access Denied: Non-Medicaid Expansion States Blocked Uninsured People with Serious Mental Illness from Receiving Affordable, Needed Treatments” shows that on a state-by-state basis, thousands of uninsured people who had been diagnosed with a serious mental health condition on January 1, 2014, and residing in the 24 states that did not expand Medicaid under the Affordable Care Act, were denied affordable, needed care throughout the year.

Utah has 15,312 uninsured people ages 18-64 with a serious mental health disorder who were projected to access services under Medicaid expansion. 

Wednesday, September 3, 2014

Lisa's Reason for Walking

Lisa e-mailed us today to tell us that she'll be walking on Saturday. Here's what she had to say:

My Name is Lisa. I’m participating in the NAMI 2014 walk in Salt Lake City UT. I’m doing this walk in honor of myself. I have Bipolar. I take a mood stabilizer everyday to help me with the highs and lows of this disorder. It’s amazing just how much of my life Bipolar effects. I’m still the amazing woman I've always been. A caring mother, sister, daughter and friend. But I have my manic days and I have my depressed days. Some days I want to be everywhere doing everything and some days I want to sit alone in my room all day. I do talk speak publicly about Bipolar. I’m not ashamed to have this disorder. Why should we be? If anything we are true warriors of hope and life and love. To live each day sometimes not knowing when the feeling ….the high or the low is going to come back because you know it always does. I always do my best to keep a positive attitude about my disorder. I take great pride in being able to participate in somethi
ng as big as reaching out and helping others that live/suffer from a mental illness.

Join us this Saturday for the NAMIWalk! Registration is free: www.namiwalks.org/utah

Wednesday, June 26, 2013

Brian Daniel Wynn 1975-2012

A message from Dan and Alice Wynn, who gathered donations for NAMI Utah from friends and family in honor of their son, Brian Daniel Wynn:

With rising recognition and emphasis being placed on mental illness and many related tragedies taking place across our country every day, we have collected donations for NAMI in memory of our son, Brian Daniel Wynn, who passed away unexpectedly on February 13, 2012 due to complications arising from mental illness and addiction. Brian, a very kind and soft spoken spirit, often displayed a sincere concern for other who were struggling or in need. However, in the end, he could not overcome his own trial and demons and was unable to obtain the treatment he needed in a timely manner, which may have saved his life. 

Thank you for your dedication to building better lives for the millions of Americans affected by mental illness. 
Sincerely, 
Dan and Alice Wynn




Dan and Alice, thank you for your donation and most importantly, thank you for your willingness to raise awareness of mental health issues and suicide. We have no doubt that Brian would be proud of the work you are doing! Stay strong, continue to shed light on these issues and take care of yourselves and each other. Remember that you are not alone!
Thank you so much,
NAMI Utah

Wednesday, May 22, 2013

Running Down Stigma: Michael's Story

In 2008 Michael Runningwolf was diagnosed with a severe mental illness known as Paranoid Schizophrenia. Although this illness has made life difficult for Michael, he says the most crippling of all things was the stigma attached to his illness. Michael now runs races to help erase the stigma of mental illness and raises funds for mental health organizations. Michael will be running the Santa Barbara International Marathon on November 9, 2013 in support of NAMI Utah. Check out his website by clicking HERE.

We had the opportunity to ask Michael a few questions. Here's what he had to say:

1.) Where did you seek help when you first received a diagnosis? 

When I first received my diagnosis, I was told that I needed to go to a psychiatric hospital so I could get the proper care I needed. I was not educated about mental illness at that time and I had no idea where to reach out for help. At the same time, most of the people in my life were distancing themselves from me and I felt very alone and scared. I found a local NAMI office in Boise Idaho and they helped me with information but I was struggling and it wasn’t long before I found myself hospitalized again and then I found myself incarcerated into the jails psychiatric unit.

2.) Tell us about your first involvement with NAMI.

The first time I found NAMI was in Idaho, but the first time I really found NAMI was when I moved to Phoenix Arizona. I went to visit them and found a home, they let me volunteer there and I found a family that supported me any way they could. I started to volunteer about two hours a week, and before I knew it I was volunteering forty hours a week before and more because I believed in what NAMI was doing and also it felt wonderful to get up every morning and have someplace to go and to know I was helping others. They saved my life, they helped me find my purpose and meaning and they did it without ever asking who my insurance provider was or what could I pay. They were my saving grace and I owe NAMI everything for what they did for me. They helped me learn about my illness, they put me in the NAMI classes, they believed in me, and they taught me that I was not alone. Without NAMI, I am not sure I would have survived it all.

3.) How has running helped you in your recovery?

It has given me a purpose, I run to break down the barriers of mental illness. When you run a 26.2 mile race and you complete with the other runners, you show that people with a diagnosis can go the distance too. Also, I hear things that others don’t and see things that others don’t and when I run, I think it releases serotonin and that gives the illness a real beating! I like to say I can drop my voices at mile five because they can’t keep up. It is my best medicine to fight them; it is my best coping skill. When I run I am free, I know I can use it to help with the symptoms and the weight gain that comes from taking psychiatric medications. In addition, running has been tool for me in breaking down stigma because I can take it to the general population and get it out to the communities, to the people who rarely ever think of mental illness except when it makes headlines because of an incident. It is my way to speak to the world, that we are people too, and we too can go the extra mile.

 4.) What were some important resources for you during your journey with mental illness? 

NAMI classes, NAMI library, and the folks at NAMI with their vast amount of knowledge and caring. They helped me navigate a system that is not easy to navigate; they helped me understand the steps to take to get what I needed. A Another important resource was my psychiatrist who actually listened to me and supported me in my healing. I am also on SMI (serious mentally ill) probation and my probation officer Doug is a huge support for me and makes it possible for me to travel and run.

5.) Do you have any advice for others seeking treatment? 

Yes, contact your local NAMI, contact them and work with them, they can be your greatest source of information and understanding. Enroll in the NAMI classes and meet other peers that struggle with psychiatric challenges. Always hope, never give up, and when you find what works for you, never stop doing what works. And share and support others when you can, giving back is empowering and when you feel empowered you have the energy and motivation to keep going strong!

Wednesday, March 20, 2013

Why Should You Give to NAMI Utah?

This Friday, March 22nd, NAMI Utah is participating in the Love UT Give UT 1st Annual Day of Giving across the state of Utah. Over 500 non-profit organizations are participating in this unprecedented day of giving. With so many non-profits needing your funds and requesting a $10 or more donation this Friday, we wanted to give you some reasons to donate to NAMI Utah. One in four of us are affected by a mental health disorder. Whether you live with a mental illness, you have a family member or loved one who lives with a mental illness, or you just stumbled upon this blog, here are some reasons to donate:

1.) NAMI Utah provides FREE support groups and education classes across the state of Utah to individuals living with a mental illness as well as families and loved ones. In order to make these classes free, we rely on donations to print materials, recruit volunteers and train teachers and facilitators.

2.) NAMI Utah is a huge advocate for mental health during the legislative session. NAMI is recognized as the preeminent voice in Utah for all Utahans impacted by mental illness. NAMI advocates have fought for policy changes that raise the bar on mental health treatment and educate our lawmakers on the lived experience of mental illness.

3.) NAMI Utah KNOWS what you're going through. Our mentors answer phone calls Monday- Friday 9:00 a.m. - 5:00 p.m. talking to individuals who have a variety of needs such as housing, discounted medications, mental health treatment resources. Our mentors also provide a listening ear for individuals with a current or new diagnosis who don't know where to turn or need some encouragement to get them through the day.

4.) Our classes are taught by individuals with the lived experience of a mental illness. They've been there, they are in recovery and they know what you're going through.

5.) NAMI Utah provides a weekly Social Group where individuals come to have sandwiches and get support from their peers. You can learn more about social group HERE.

6.) NAMI Utah holds the largest mental health awareness event in Utah, the NAMIWalks. Click HERE to watch the video featuring our 2011 Walk.

7.) Early Intervention is crucial! NAMI Utah participates in many early intervention programs including the Family Resource Facilitator project as well as the school-based mental health program called Hope for Tomorrow. This program talks to students about mental health issues, helps erase the stigma of mental illness, and fosters hope among students and their families.

8.) The NAMI Provider Education Program is a 5-week course that presents a penetrating, subjective view of family and consumer experiences with serious mental illness to staff at public and private agencies, who work directly with people experiencing severe and persistent mental illnesses.

9.) We have recently expanded our Diversity Outreach efforts and have classes in Spanish for both family members and individuals! We have a support group for the LGBT community and we recently completed a support group for the refugee community.

10.) If you've taken one of our classes, participated in a support group or any of our other programs, you have been impacted by NAMI and we need your support! So many individuals who take our classes are forever changed by the content discussed and the community that results from sharing stories, and a shared understanding of the journey towards recovery.

These are just 10 reasons to donate to NAMI Utah, we can think of so many more! Have you been impacted by NAMI in some way?! Make sure you share YOUR reason to give with your friends, family,  co-workers, and strangers! If you give on Friday, your donation will be matched, up to $2,000. An even better reason to give! Every $10 donation counts!

HERE is the link to our fundraising page.

Tuesday, January 29, 2013

Running from Crazy: Film Review

Running From Crazy is a film recently released at the Sundance Film Festival. It documents Mariel Hemingway’s exploration of the mental illness that has plagued her family and the suicide that has claimed seven of their lives. Her personal struggles along with the death of family members including her grandfather, famed writer Ernest Hemingway and sister, supermodel/actress Margaux Hemingway leads Mariel to seek answers. Is her family cursed? Or is there hope?

Spoiler alert, there is hope! Through exploration and understanding of her families’ complex history she is able to find her path to acceptance and recovery. She learns to forgive her family for their imperfections and embrace the positive things they stood for. She talks about how important it is for her to reject alcohol in light of her family history of addiction. She explores the importance of nutrition, exercise, and overall wellness in her life and advocates for the incorporation of wellness in mental health treatment.

Photo from the Running from Crazy Facebook Page
Most importantly she learns how important it is to talk about mental illness and suicide. She talks to her daughters about their family history and the anxiety and fear for their well being. She talks to the community about mental illness and suicide prevention and how important it is to be open and willing to ask questions- the questions that are hard and maybe we don’t want to know the answer to because it might be scary. Scary, but important. Those questions and that support might be the lifeline someone needs. We need to bring mental illness out of the shadows. We need to talk about it.

Here at NAMI Utah, we too understand the importance of talking about mental health and fighting stigma. We advocate for access to effective treatment and equality in all aspects of life. We work to provide information and education about mental illness so we and our loved ones are no longer misunderstood. We work to provide networks of support for those impacted by mental illness. We, along with Mariel Hemingway, know that there is hope. For information on NAMI Utah and to find support in your area, click here.

Did you see Running From Crazy? Share your thoughts!

Friday, July 6, 2012

Supreme Court Ruling Huge for Mental Health Care


The Supreme Court ruled on June 28 to uphold the majority of the federal health care reform law, the Affordable Care Act (ACA), including important protections for people with mental illnesses. Thanks to the ruling, Utah will be able to continue moving forward to establish a health insurance exchange, which under the law, must include coverage for mental health care and must adhere to the mental health parity law. People buying health insurance in these exchanges may qualify for premium subsidies or financial help to ensure they can afford the coverage they need.
Utah will also be able to go ahead with plans to expand to Medicaid to cover all who have annual incomes up to 138 percent of federal poverty guidelines ($15,400) and who are not certified as disabled. Many of the people who will benefit from this change, which takes effect in 2014, live with a mental illness but are not considered 'disabled' and this is an important move to ensure they can access the treatment and services they need.

The court's decision will mean that children and young adults can remain on their parent’s health insurance plans until age 26 as well. This is typically the largest group of people who are without insurance and an age when people often experience their first psychotic episode.  New plans will also have to offer preventive services, such as mental health screenings, at no cost to the individual.  The court’s ruling will ensure people will be able to access the screening and treatment they need, when they need it.  The court also upheld a provision barring insurance companies from denying people coverage because they have a pre-existing condition, including a mental illness. This means that people will no longer be unable to obtain health insurance simply because they live with a mental illness nor will they be able to be charged much higher premiums based on their health status. The ruling is a huge victory for the mental health community and NAMI Utah applauds the Supreme Court for upholding these important provisions of the health reform law. For a detailed analysis of the implications of the decision, visit SCOTUSBlog.
For additional reading on the ACA and mental health care in Utah click HERE.

Wednesday, February 15, 2012

What Would Happen if you Had to Jump Through Hoops to Get the Mental Health Medication that Works for you?

NAMI Utah has taken an opposing stance on Senate Bill 85. SB 85 is a bill that will put mental health drugs on the Medicaid Preferred Drug List. You can read the bill in it's entirety here.

Some history on the bill: In 2007, the Utah Medicaid Program implemented a "Preferred Drug List" which included an exemption for psychotropic or antipsychotic drugs. 

NAMI Utah has been involved with this discussion to maintain the exemption for medications used to treat mental illness for many years now. This exemption is critical in keeping those who live with mental illness healthy and productive. 

NAMI takes an opposing position to this bill because treatment does work if people can access it. Having access to the medications this vulnerable population needs based on their physician's best clinical judgement can make all the difference in the outcomes for people and in helping them live full and productive lives in the community.
You cannot simply look at pharmacy costs in treating mental illness. It costs the state $3,200 to maintain someone with serious mental illness in the community. It costs the same amount to hospitalize someone for three days. That can be just one medication change. Individuals living with serious mental illness have complex conditions that require individualized treatment. Adding a level of bureaucracy to the process of accessing medications will be a deterrent to individuals complying.
It is important to note that two very expensive (and effective) psychotropics have gone generic this year (Zyprexa, Seroquel). This is significant because this shows how the market takes care of itself to regulate these medications, and their costs.
Talking points to use in your conversation to your Senator: 

1.) Mental illness and the medications for treatment can be very complicated.  Missed doses, discontinuation, or changes in doses or specific medication can result in serious relapses which can result in devastating consequences for individuals, families and our communities. 

2.) Prescribers must be able to use their best clinical judgment when prescribing psychotropic medications.  With mental illness, people often have to try many medications and different combinations to find relief of their symptoms and to move on to recovery. 

3.) Because compliance is critical for treatment success, side effects can be very serious, and there is not a “one-size-fits all” solution, medications for mental illness should remain exempt from the Preferred Drug List. 

Please write to your legislators and tell them to oppose SB 85. Need help finding your legislator? Click here to search by your district.

Thursday, February 2, 2012

For Parents of Children with Bipolar Disorder


Andy Hogan is a guest blogger for NAMI Utah. These thoughts are his and his alone. Here is his story:

“…It’s like you’re drowning right in front of me, and I’m reaching out but you can’t see,
There’s something holding on to you so tight, so I guess this is all I’ll say to you tonight: If you ever need me, you know where to find me, I will be waiting, where I’ve always been…right by your side.”  -Matthew West

I love the message of this song. It describes well an emotion that so many parents experience as they watch their child battle bipolar disorder. When I say “child” I mean child of all ages. Parents are parents no matter how old their children get. Almost all parents love their children deeply and it rips their hearts apart to see a child suffer all the emotional, spiritual, and physical agony that depression and mania can cause.

My parents are no exception. Growing up I had symptoms of depression and mania, but no one suspected they could become as extreme as they did. At 19 I went to Taiwan on a volunteer mission for my church. My assignment was for around 24 months. However, after just ten months, my parents received a phone call I’m sure they will never forget.

The phone conversation went something like this, “Your son is experiencing some kind of psychotic breakdown. He can’t respond to simple questions. He has been restrained in a church house. Sometimes he screams out, or bursts into hysterical laughter followed by crying like a baby. This and other very bizarre behavior has gone on for several hours. He even bit another missionary on the leg. Can you tell me what is happening and what we should do?” 

I can’t imagine the anguish my parents suffered during that time in my life. I think any parent that receives this type of news suffers similarly. My parents had a small understanding of what was happening because my mother had been diagnosed with mental illness years before. She too had suffered a mental break breakdown. It’s hard to say if this personal understanding was helpful or hurtful though because my parents knew all-too-well the anguish I was suffering, and they also knew this was only the first explosion of a lifelong war.

Under the direction of my parents, my leader along with some other missionaries in Taiwan took me to a hospital where sedative injects were the only option to gain control. So much medication was needed to put me under that I didn’t consciously wake up for a whole week. When I finally “came to,” I found myself back in the USA locked in the psychiatric ward of a hospital. My parents made a two hour drive every day to see me during visiting hours.

As I tried to figure out just what happened to me and how I should deal with it, my first reaction was to throw blame at my parents for things they had said and done while raising me. As I cried and criticized them during our therapy sessions they were very loving and willing to try and correct things from our past. I’m sure they knew that my problem was more “nature” and less “nurture” (meaning the chemistry in head was the main cause of my bipolar disorder, not the way they raised me) but they were willing to try and help in any way they could, even if it meant me pointing my finger at them, all the while not being willing to admit, in even the smallest way, that any of my attitudes or personality traits needed to be corrected as well.
How much love does it take for parents to willingly take verbal lashings of criticism and blame for a life-shattering breakdown when they know they weren’t the reason for it? As they say in Chinese: A great big pile of love. Looking back at it now, 20 years later, I can see the love my parents showed me was similar to another great and loving Person who lived a perfect life, but willingly suffered the pain of every person, just hoping that by doing so some of us wouldn’t have to hurt so much.

The issues of my past with my parents were important to address and talk about. I’m sure my parents would be the first to admit that imperfections in their parenting cast loops and knots into the attitudes and thought processes I reeled in during my childhood and teenage years. Add to the snarl the fact that during that time, my mother was also fishing for understanding of mental illness with many of the same kinks and twists in her own line, and you get a very tangled mesh of influences. I’m pretty good at untangling messed-up fishing lines, but sometimes the best way to fix the problem is to simply cut the line, discard the tangles, and restart with the line you have remaining in your reel.  Sadly, at that point in my life I focused only on the tangles and didn’t appreciate or even acknowledge that at the end of my parents’ line was a golden hook of love stuck in the belt loop of my waist that lifted me up and saved me from drowning again and again.

After a month in the hospital I was reassigned to Montana to continue my volunteer mission. There, after just three months, I quit taking my medication and suffered another breakdown even more severe than the first one. Once again, my parents got the frantic phone call. Living in a neighboring state, Mother and Dad were able to get a quick flight to Bozeman. Arriving at the psychiatric ward, the staff of the Bozeman hospital informed them I had been given sedative injections to stop the psychotic madness. The nurse led them to the padded, locked holding cell where I was asleep on a thin mat on the floor.

When I awoke, the psychosis had cycled to depression. This meant I was sane, but very down and extremely anxious in mind and body. When the hospital told my parents they wouldn’t allow my release until the next day, my loving father couldn’t stand the thought of me in the cell alone all night. So he came in and spent what felt like an eternal night with me locked inside the padded room. More injections through the night forced me to sleep, but interrupted what little sleep Dad had. I slept on the mat and he tossed and turned on the cold, tile floor. Although I was drugged and loopy, blue as toilet water, confused, cold and stripped of any dignity, the love my father showed me that night touched my heart in a way I had never felt before.

The next day, my parents flew with me back to my home state. Straight from the airport, they immediately drove me to a local clinic for behavioral medicine. As they started filling out the paperwork to check me in, my mother asked the director what their program was like. The director described a program with strict enforcement of curfews, early morning rising, and busy, intense therapy. Feeling like I was being checked into a boot camp, fear caused my body to tremble and shake. I knew I had no say in whether or not the clinic was for me. I’ll never forget the relief and gratitude I felt when my mother lovingly looked at me, tore up the registration papers and said, “Andy doesn’t need this. Let’s go home.”  The night with my dad and the understanding of my mother sparked warmth in my heart that began the thaw of my ice-hard stubbornness.

Choosing to bring me home did not make life for my parents easier. Rather, it was “the hard way.” Although a trickle of refined, clean humility had started to clear my eyes and allow me to see glimpses of my parents’ love for me, in my brain, bipolar disorder was now a raging, roaring, full-blown flash flood. To someone observing my manic depressive storm from a distance, the love my parents showed me during that tumultuous time would seem as obvious as a giant rainbow gleaming through the pouring rain. But through the following weeks, months, and even years, I kept my eyes focused mostly on the muddy memories of manic yesterdays, and my hands grasping for a sandy future that the bipolar flood had washed away. Choosing to swim my bipolar flood alone and face down in the cyclone waters of denial, ignorance, and confusion, my parents could only watch as my life continued to spiral lower and lower. When the inevitable crush of rock bottom forced me to admit I needed help and to realize I couldn’t get back afloat alone, guess who was there to mop up my tears, take me by the hand, and lovingly start lifting me back up? Of course, it was the ones who had been there all along; my parents.  

In conclusion, I’d like to offer this to my parents and all parents of children with bipolar disorder or any other mental illness. Thank you can’t be said enough times for your love, patience, and care. For too many years the pain and confusion of my own suffering blinded me to yours. You suffered as much or more than I did! But you never despaired nor abandoned me, and when I finally looked inward to find the problem and outward for help, instead of the other way around, I finally saw and appreciated that your love was a precious gift that I had been taking for granted. Now I know you are the unsung heroes of my bipolar war; the ones who had and continue to have my back in every battle. Thank you. Thank you.

To those parents whose children are still so blinded by the pain and confusion of their bipolar battles that they don’t see how much you suffer in their behalf, won’t hear the healing words you offer, and can’t appreciate or even feel the love you carry for them, I just want to say, thank you for caring and thank you for continuing to try. I believe as long as you don’t give up, your children will always have hope. Keep trying, keep praying, and continue on where you’ve always been…right by their sides.    

Andy Hogan

Andy has a “Bipolar Blog” at www.bearcanyonpress.com

To submit your own story to be featured on the NAMI Utah blog contact Mary Burchett 

Tuesday, January 3, 2012

Happy New Year and Welcome!

One of our 2012 resolutions here at NAMI Utah is to start this blog where readers, class participants, NAMI supporters and the rest of the world wide web can read about science and research updates, find out about classes in your area, read and share stories about the journey of living with a mental illness and loving someone with a mental illness and much more.

As we get started, posts will be weekly, however if you have a story to share or a thought on how to improve this blog please e-mail maryb@namiut.org.

For more information about NAMI Utah you can check out our website: www.namiut.org or "Like" us on Facebook