Showing posts with label NAMI Utah. Show all posts
Showing posts with label NAMI Utah. Show all posts

Friday, April 10, 2015

No Care for Us

ACCESS DENIED

Non-Medicaid Expansion States Block Uninsured People with Serious Mental Illness from Receiving Affordable, Needed Treatments
Prepared by Joel E. Miller, James K. Finley, Rebecca Gibson and Whitney Meyerhoeffer

A new groundbreaking study from the American Mental Health Counselors Association (AMHCA) shows that nearly 570,000 people diagnosed with a serious mental health condition, would have received affordable, needed treatments, but were denied access to services because several states refused to participate in the new Medicaid Expansion Program. The federal government would have paid 100 percent of the treatment costs; the monies were already included in the federal budget. The comprehensive study also highlights that 458,000 fewer people would have avoided a depressive disorder mainly by securing health insurance through the Medicaid Expansion Program.

The study, entitled “Access Denied: Non-Medicaid Expansion States Blocked Uninsured People with Serious Mental Illness from Receiving Affordable, Needed Treatments” shows that on a state-by-state basis, thousands of uninsured people who had been diagnosed with a serious mental health condition on January 1, 2014, and residing in the 24 states that did not expand Medicaid under the Affordable Care Act, were denied affordable, needed care throughout the year.

Utah has 15,312 uninsured people ages 18-64 with a serious mental health disorder who were projected to access services under Medicaid expansion. 

Thursday, April 3, 2014

See You Later

Good-byes seem so finite. So we're saying "See you later" to our dear friend, NAMI advocate, amazing mother, incredible co-worker and the sunshine in our lives.

Sarah Gilbertson has been working at NAMI Utah for the past 3 years now and she has brought so much joy and happiness to our office. Her jovial voice can be heard across the hall and her laughter can be heard across the street! We had a little "See You Later" party for her the other day and we all went around the room sharing memories of Sarah. It probably sounded like a circus in that boardroom from all the laughing and then subsequent crying.

Sarah is amazing, if you don't know her she has conducted our Provider Education training, click HERE for more details, and coordinated all of our Teacher and Facilitator trainings. She has built incredible relationships with community partners, providers, panelists and so many others who hold a special place for her in their hearts.

While Sarah is so upbeat, positive and always smiling, she and her beautiful children have been dealing with their own struggles with mental illness. You can read her story, in her own words, on her blog HERE.She is leaving NAMI to take care of her beautiful children full-time.

Even when her days start out rough with her kids, she comes around to everyone's office, offering them a hello or if they're lucky, like me, a hug. She is the epitome of a NAMI advocate and we have been so blessed by her presence here.

Luckily for us, she will remain a huge part of our lives here at NAMI and has even decided to help with the NAMIWalk this year. We couldn't be more grateful for her dedication to this cause! 

When I think of Sarah, I think of this quote to the left from Story People. It says, "Anyone can slay a dragon, he told me, but try waking up every morning and loving the world all over again. That's what takes a real hero." Sarah is our real hero. She wakes up every morning and loves the world all over again! And we love her right back! 

So Sarah, we aren't saying good-bye, no way! We are simply saying, "See you later!"

Wednesday, August 7, 2013

What Happens in Class, Stays in Class

With the next round of NAMI Utah’s class for teens, Progression, coming up, you may ask yourself – “why should I sign up? Why should I go if my parents aren’t dragging me?” And to that, I say, “Dude, you are missing out!” Progression is a great class where you can learn about dealing with your problems instead of just letting them drag you through life, all while being taught by teachers who have been there, and been there recently. No detention or quizzes here; just real talk from people who have dealt with what you’re dealing with, and people who are honest, open, and unashamed of their experiences. These teachers will give you
the tools to be proactive about your illness instead of just letting it rule your life. Oh, and did I mention we have an opportunity for you to meet other people your age that are dealing with the same problems? There is no judgment in Progression, and everything you tell the class is confidential. I call it “The Vegas Rule” – what’s said in class, stays in class. What could be better than that?

I haven’t yet mentioned my personal favorite part of Progression – they have been coined “Emotional First-Aid Kits” but I personally thought the name could use a change, so every class gets to call it what they want. What is an “Emotional First-Aid Kit”, you might be asking? These Kits are small boxes that you decorate with supplies we provide, and fill with things that make you feel better when you’re down. Love listening to some smooth R&B jams to chill you out? Pop that iPod in the box! Is a bubble bath more your speed? Tuck a few bottles away in the box! Snuggly stuffed animal from your younger days your go-to? Put that little critter in his new home! These Kits, like Progression, are all about you – how your mind works, how to cope, how to communicate, how to just be you. And you, you will find out, are pretty darn rad – illness or not.

To sign up for Progression, call NAMI Utah at (801) 323-9900. Progression, like all of our classes and support groups, is totally FREE! (And totally awesome, I might add.)

Erin is a Whole Health Care Manager and Mentor at NAMI Utah and is a teacher, teacher trainer, and state trainer for Progression, having taught nearly a dozen classes and trained many people both in Utah and Minnesota in the Progression program. She also likes to think she is pretty cool – most days!

Wednesday, June 26, 2013

Brian Daniel Wynn 1975-2012

A message from Dan and Alice Wynn, who gathered donations for NAMI Utah from friends and family in honor of their son, Brian Daniel Wynn:

With rising recognition and emphasis being placed on mental illness and many related tragedies taking place across our country every day, we have collected donations for NAMI in memory of our son, Brian Daniel Wynn, who passed away unexpectedly on February 13, 2012 due to complications arising from mental illness and addiction. Brian, a very kind and soft spoken spirit, often displayed a sincere concern for other who were struggling or in need. However, in the end, he could not overcome his own trial and demons and was unable to obtain the treatment he needed in a timely manner, which may have saved his life. 

Thank you for your dedication to building better lives for the millions of Americans affected by mental illness. 
Sincerely, 
Dan and Alice Wynn




Dan and Alice, thank you for your donation and most importantly, thank you for your willingness to raise awareness of mental health issues and suicide. We have no doubt that Brian would be proud of the work you are doing! Stay strong, continue to shed light on these issues and take care of yourselves and each other. Remember that you are not alone!
Thank you so much,
NAMI Utah

Friday, July 6, 2012

Supreme Court Ruling Huge for Mental Health Care


The Supreme Court ruled on June 28 to uphold the majority of the federal health care reform law, the Affordable Care Act (ACA), including important protections for people with mental illnesses. Thanks to the ruling, Utah will be able to continue moving forward to establish a health insurance exchange, which under the law, must include coverage for mental health care and must adhere to the mental health parity law. People buying health insurance in these exchanges may qualify for premium subsidies or financial help to ensure they can afford the coverage they need.
Utah will also be able to go ahead with plans to expand to Medicaid to cover all who have annual incomes up to 138 percent of federal poverty guidelines ($15,400) and who are not certified as disabled. Many of the people who will benefit from this change, which takes effect in 2014, live with a mental illness but are not considered 'disabled' and this is an important move to ensure they can access the treatment and services they need.

The court's decision will mean that children and young adults can remain on their parent’s health insurance plans until age 26 as well. This is typically the largest group of people who are without insurance and an age when people often experience their first psychotic episode.  New plans will also have to offer preventive services, such as mental health screenings, at no cost to the individual.  The court’s ruling will ensure people will be able to access the screening and treatment they need, when they need it.  The court also upheld a provision barring insurance companies from denying people coverage because they have a pre-existing condition, including a mental illness. This means that people will no longer be unable to obtain health insurance simply because they live with a mental illness nor will they be able to be charged much higher premiums based on their health status. The ruling is a huge victory for the mental health community and NAMI Utah applauds the Supreme Court for upholding these important provisions of the health reform law. For a detailed analysis of the implications of the decision, visit SCOTUSBlog.
For additional reading on the ACA and mental health care in Utah click HERE.

Wednesday, June 13, 2012

Scrabble, Songs, and Sandwiches


Today [June 7, 2012] I visited NAMI's Social Group, which used to be called Soup Group, until we quit serving soup and started serving sandwiches, but Sandwich Group didn’t have quite the same ring to it. We recently had to move our office and with the change we decided to hold the group elsewhere while we transition. Jackie, T.J. and Rick have been running Social Group at the North Valley Mental Health facility since our move. Since then, I have had limited interaction with those individuals who benefit from the services NAMI provides. I have been so busy in my own world, the move, our recent Open House, other daily tasks, not to mention everything outside of work! So I have been looking forward to attending Social Group and talking with some of the folks who attend.
 
Recently the number of participants in social group has grown. Between 30 and 40 people have been coming consistently for a few months now. I want to share with you some of the great things I saw from our participants.

*I have changed the names of some of the individuals I spoke with for confidentiality purposes.

Jackie and I arrived at the basement of North Valley around 11:25 a.m. and while group doesn’t start until 11:30 a.m., people were already in line for their sandwich. Jackie introduced me to everyone and while I thought they might be a little skeptical that I was there to “write about them”, I was wrong! Everyone was immediately friendly and welcoming. One man, John, quickly pulled out the Scrabble board and challenged me to a game. I love Scrabble and can never turn down a game, so I was more than happy to comply!

I let John finish his sandwich while I set up the game, and his large bites indicated this might have been his first meal of the day. Jackie told me on the way over that many participants were part of the mental health court system. Social Group is one of the only places they can go for a meal, a welcoming smile, and interactions with people who “get it.” People who have been through similar situations and know what it feels like to go through the “system.”

John and I started our game. We went on a few rounds, before he had to go take his meds. So we took a short break and I went to talk to another gentleman, Leo, who was Native American. Jackie has told him she used to work for the Indian Health Service and he brought some items to share including small figurines that he had carved himself, some corn pollen, and a pipe. He went through each of the items showing me his handy work. The small figurines were intricately carved with various stone and he explained each one to me. I marveled at his handy work!

John came back and we got back in the game. John seemed to be experiencing fixed delusions as his conversation got a little hard to follow. When I asked Jackie later what his diagnosis was she said she didn’t know. She told me that she never asks what someone’s diagnosis is because it doesn’t affect her interaction or relationship with them. “I see them first as people; I don’t see them as their illness,” she explains to me, “They are welcomed in as people just as I would welcome anyone into any social circle of mine.” I couldn’t agree more.

Most of the time we were playing, the gentleman to my right was strumming his mandolin. It was the perfect background noise, and his tunes were amazing. He told me that he had only been playing for a couple of years; he had taken lessons previously but for the most part he was teaching himself. Although he was a little slow in his conversation, he was extremely intelligent, explaining some of the notes for me as I watched in awe.

John kicked my butt in Scrabble, although I did hold my own for a while there. We ended our game as people were slowly filtering out; moving on to the next appointment or meeting. These folks are some of the coolest people I’ve had the opportunity to interact with in quite some time. They come to this group to exercise their social skills and be with people who understand them and don’t ask questions. They get a nice meal of sandwiches purchased from Valley Catering Services and amazing desserts generously donated by Russ Juillerat of World's Finest Chocolate. They know that the group will be there for them. Jackie, T.J. and Rick are on hand to answer any questions that may come up and resources are distributed to the participants. (This week Jackie handed out discounted prescription cards.)

I can’t stress the importance of this group enough. On average 20 individuals who attend social group are in the mental health court system. The mental health court system is designed to help prevent them from re-offending.  Fostering healthy relationships is an important part of preventing relapses.  The Social Group provides an opportunity for everyone to interact in an environment that’s safe and welcoming.

I had an amazing experience at Social Group. I want the community and our supporters to know about this program and to give them a renewed desire to advocate on behalf of those living with a mental illness, because as Jackie said, we're all people, first and foremost.

Monday, February 27, 2012

NAMI Utah is Moving!

Beginning March 9, 2012 our new address is:
1600 West 2200 South Suite 201
West Valley City, UT 84119

Everything else will stay the same including our phone number: 801-323-9900

Wednesday, February 15, 2012

What Would Happen if you Had to Jump Through Hoops to Get the Mental Health Medication that Works for you?

NAMI Utah has taken an opposing stance on Senate Bill 85. SB 85 is a bill that will put mental health drugs on the Medicaid Preferred Drug List. You can read the bill in it's entirety here.

Some history on the bill: In 2007, the Utah Medicaid Program implemented a "Preferred Drug List" which included an exemption for psychotropic or antipsychotic drugs. 

NAMI Utah has been involved with this discussion to maintain the exemption for medications used to treat mental illness for many years now. This exemption is critical in keeping those who live with mental illness healthy and productive. 

NAMI takes an opposing position to this bill because treatment does work if people can access it. Having access to the medications this vulnerable population needs based on their physician's best clinical judgement can make all the difference in the outcomes for people and in helping them live full and productive lives in the community.
You cannot simply look at pharmacy costs in treating mental illness. It costs the state $3,200 to maintain someone with serious mental illness in the community. It costs the same amount to hospitalize someone for three days. That can be just one medication change. Individuals living with serious mental illness have complex conditions that require individualized treatment. Adding a level of bureaucracy to the process of accessing medications will be a deterrent to individuals complying.
It is important to note that two very expensive (and effective) psychotropics have gone generic this year (Zyprexa, Seroquel). This is significant because this shows how the market takes care of itself to regulate these medications, and their costs.
Talking points to use in your conversation to your Senator: 

1.) Mental illness and the medications for treatment can be very complicated.  Missed doses, discontinuation, or changes in doses or specific medication can result in serious relapses which can result in devastating consequences for individuals, families and our communities. 

2.) Prescribers must be able to use their best clinical judgment when prescribing psychotropic medications.  With mental illness, people often have to try many medications and different combinations to find relief of their symptoms and to move on to recovery. 

3.) Because compliance is critical for treatment success, side effects can be very serious, and there is not a “one-size-fits all” solution, medications for mental illness should remain exempt from the Preferred Drug List. 

Please write to your legislators and tell them to oppose SB 85. Need help finding your legislator? Click here to search by your district.

Thursday, February 2, 2012

For Parents of Children with Bipolar Disorder


Andy Hogan is a guest blogger for NAMI Utah. These thoughts are his and his alone. Here is his story:

“…It’s like you’re drowning right in front of me, and I’m reaching out but you can’t see,
There’s something holding on to you so tight, so I guess this is all I’ll say to you tonight: If you ever need me, you know where to find me, I will be waiting, where I’ve always been…right by your side.”  -Matthew West

I love the message of this song. It describes well an emotion that so many parents experience as they watch their child battle bipolar disorder. When I say “child” I mean child of all ages. Parents are parents no matter how old their children get. Almost all parents love their children deeply and it rips their hearts apart to see a child suffer all the emotional, spiritual, and physical agony that depression and mania can cause.

My parents are no exception. Growing up I had symptoms of depression and mania, but no one suspected they could become as extreme as they did. At 19 I went to Taiwan on a volunteer mission for my church. My assignment was for around 24 months. However, after just ten months, my parents received a phone call I’m sure they will never forget.

The phone conversation went something like this, “Your son is experiencing some kind of psychotic breakdown. He can’t respond to simple questions. He has been restrained in a church house. Sometimes he screams out, or bursts into hysterical laughter followed by crying like a baby. This and other very bizarre behavior has gone on for several hours. He even bit another missionary on the leg. Can you tell me what is happening and what we should do?” 

I can’t imagine the anguish my parents suffered during that time in my life. I think any parent that receives this type of news suffers similarly. My parents had a small understanding of what was happening because my mother had been diagnosed with mental illness years before. She too had suffered a mental break breakdown. It’s hard to say if this personal understanding was helpful or hurtful though because my parents knew all-too-well the anguish I was suffering, and they also knew this was only the first explosion of a lifelong war.

Under the direction of my parents, my leader along with some other missionaries in Taiwan took me to a hospital where sedative injects were the only option to gain control. So much medication was needed to put me under that I didn’t consciously wake up for a whole week. When I finally “came to,” I found myself back in the USA locked in the psychiatric ward of a hospital. My parents made a two hour drive every day to see me during visiting hours.

As I tried to figure out just what happened to me and how I should deal with it, my first reaction was to throw blame at my parents for things they had said and done while raising me. As I cried and criticized them during our therapy sessions they were very loving and willing to try and correct things from our past. I’m sure they knew that my problem was more “nature” and less “nurture” (meaning the chemistry in head was the main cause of my bipolar disorder, not the way they raised me) but they were willing to try and help in any way they could, even if it meant me pointing my finger at them, all the while not being willing to admit, in even the smallest way, that any of my attitudes or personality traits needed to be corrected as well.
How much love does it take for parents to willingly take verbal lashings of criticism and blame for a life-shattering breakdown when they know they weren’t the reason for it? As they say in Chinese: A great big pile of love. Looking back at it now, 20 years later, I can see the love my parents showed me was similar to another great and loving Person who lived a perfect life, but willingly suffered the pain of every person, just hoping that by doing so some of us wouldn’t have to hurt so much.

The issues of my past with my parents were important to address and talk about. I’m sure my parents would be the first to admit that imperfections in their parenting cast loops and knots into the attitudes and thought processes I reeled in during my childhood and teenage years. Add to the snarl the fact that during that time, my mother was also fishing for understanding of mental illness with many of the same kinks and twists in her own line, and you get a very tangled mesh of influences. I’m pretty good at untangling messed-up fishing lines, but sometimes the best way to fix the problem is to simply cut the line, discard the tangles, and restart with the line you have remaining in your reel.  Sadly, at that point in my life I focused only on the tangles and didn’t appreciate or even acknowledge that at the end of my parents’ line was a golden hook of love stuck in the belt loop of my waist that lifted me up and saved me from drowning again and again.

After a month in the hospital I was reassigned to Montana to continue my volunteer mission. There, after just three months, I quit taking my medication and suffered another breakdown even more severe than the first one. Once again, my parents got the frantic phone call. Living in a neighboring state, Mother and Dad were able to get a quick flight to Bozeman. Arriving at the psychiatric ward, the staff of the Bozeman hospital informed them I had been given sedative injections to stop the psychotic madness. The nurse led them to the padded, locked holding cell where I was asleep on a thin mat on the floor.

When I awoke, the psychosis had cycled to depression. This meant I was sane, but very down and extremely anxious in mind and body. When the hospital told my parents they wouldn’t allow my release until the next day, my loving father couldn’t stand the thought of me in the cell alone all night. So he came in and spent what felt like an eternal night with me locked inside the padded room. More injections through the night forced me to sleep, but interrupted what little sleep Dad had. I slept on the mat and he tossed and turned on the cold, tile floor. Although I was drugged and loopy, blue as toilet water, confused, cold and stripped of any dignity, the love my father showed me that night touched my heart in a way I had never felt before.

The next day, my parents flew with me back to my home state. Straight from the airport, they immediately drove me to a local clinic for behavioral medicine. As they started filling out the paperwork to check me in, my mother asked the director what their program was like. The director described a program with strict enforcement of curfews, early morning rising, and busy, intense therapy. Feeling like I was being checked into a boot camp, fear caused my body to tremble and shake. I knew I had no say in whether or not the clinic was for me. I’ll never forget the relief and gratitude I felt when my mother lovingly looked at me, tore up the registration papers and said, “Andy doesn’t need this. Let’s go home.”  The night with my dad and the understanding of my mother sparked warmth in my heart that began the thaw of my ice-hard stubbornness.

Choosing to bring me home did not make life for my parents easier. Rather, it was “the hard way.” Although a trickle of refined, clean humility had started to clear my eyes and allow me to see glimpses of my parents’ love for me, in my brain, bipolar disorder was now a raging, roaring, full-blown flash flood. To someone observing my manic depressive storm from a distance, the love my parents showed me during that tumultuous time would seem as obvious as a giant rainbow gleaming through the pouring rain. But through the following weeks, months, and even years, I kept my eyes focused mostly on the muddy memories of manic yesterdays, and my hands grasping for a sandy future that the bipolar flood had washed away. Choosing to swim my bipolar flood alone and face down in the cyclone waters of denial, ignorance, and confusion, my parents could only watch as my life continued to spiral lower and lower. When the inevitable crush of rock bottom forced me to admit I needed help and to realize I couldn’t get back afloat alone, guess who was there to mop up my tears, take me by the hand, and lovingly start lifting me back up? Of course, it was the ones who had been there all along; my parents.  

In conclusion, I’d like to offer this to my parents and all parents of children with bipolar disorder or any other mental illness. Thank you can’t be said enough times for your love, patience, and care. For too many years the pain and confusion of my own suffering blinded me to yours. You suffered as much or more than I did! But you never despaired nor abandoned me, and when I finally looked inward to find the problem and outward for help, instead of the other way around, I finally saw and appreciated that your love was a precious gift that I had been taking for granted. Now I know you are the unsung heroes of my bipolar war; the ones who had and continue to have my back in every battle. Thank you. Thank you.

To those parents whose children are still so blinded by the pain and confusion of their bipolar battles that they don’t see how much you suffer in their behalf, won’t hear the healing words you offer, and can’t appreciate or even feel the love you carry for them, I just want to say, thank you for caring and thank you for continuing to try. I believe as long as you don’t give up, your children will always have hope. Keep trying, keep praying, and continue on where you’ve always been…right by their sides.    

Andy Hogan

Andy has a “Bipolar Blog” at www.bearcanyonpress.com

To submit your own story to be featured on the NAMI Utah blog contact Mary Burchett 

Tuesday, January 3, 2012

Happy New Year and Welcome!

One of our 2012 resolutions here at NAMI Utah is to start this blog where readers, class participants, NAMI supporters and the rest of the world wide web can read about science and research updates, find out about classes in your area, read and share stories about the journey of living with a mental illness and loving someone with a mental illness and much more.

As we get started, posts will be weekly, however if you have a story to share or a thought on how to improve this blog please e-mail maryb@namiut.org.

For more information about NAMI Utah you can check out our website: www.namiut.org or "Like" us on Facebook